Welcome to Georgie Pie's Brighter Future in Wrexham!

Sponsored by Wrexham Trade Frame

 

Georgie Pie's Brighter Future was originally set up to raise funds for Georgia Edwards who is Four years old and lives in Johnstown, Wrexham. At the time Georgia was diagnosed with Global Development Delay and from June - September 2013 we managed to raise over £5000 for equipment to enable her an easier way of life.

 

However...........

 

On the 6th September 2013, Georgia was diagnosed with Rett Syndrome and our hearts were broken.

 

http://youtu.be/9MFVuuymZ0s

 

About Rett Syndrome

 

Rett Syndrome is a debilitating disorder which most often strikes previously healthy little girls just  after they have learned to walk and say a few words and begins to drag  their development backwards.

As the cascade of Rett symptoms descends,  girls lose acquired skills, normal movement and speech. Girls are left  unable to communicate or use their hands to hold, carry or manipulate  objects.

Over time, girls who have learned to walk often lose that ability as  well. Loss of motor control sets in, essentially locking these girls  into bodies that won't work, leaving them without the ability to make  puroposeful movements.

Complications are many, including:

  • Disordered breathing
  • Severe digestive problems
  • Difficulty eating, chewing and swallowing
  • Orthopaedic abnormalities such as  scoliosis and fragile bones
  • Disrupted sleep patterns
  • Extreme anxiety
  • Seizures
  • Impaired cardiac and circulatory function
  • Parkinson-like tremors
  • Sudden and unexplained death

There is no cure for Rett Syndrome.

 

Parents who discover that their daughters have this condition have no real treatment options. They are impotent in the face of this disease, as their little girl  begins to fall, as her spine bends, as her body is racked with violent  seizures.

 

Most girls with Rett Syndrome survive into adulthood, becoming increasingly more disabled over time. Invariably, they need one to one, 24 hour a day care for the rest of their lives. For families living with Rett Syndrome, the prognosis has always been poor, until the reversal experiments of 2007 catapulted the disorder into new realms of possibility, positioning Rett Syndrome to become the world's first curable brain disorder.

 

We believe that Rett Syndrome is reversible. Everything we do every day  stems from this belief.

Join us. Help us change our children's  future.

 

 

 

 

Recently Georgia featured on itv News Wales. We are so incredibly proud of our beautiful girl. Click on the following link to watch. http://www.itv.com/news/wales/update/2013-08-12/family-hope-technology-can-help-daughter-communicate/

Our projects

 Georgie Pie's Brighter Future has two main focuses:

 

To raise funds for specialised equipment to improve Georgia's way of life.

 

From June to November 2013 Georgie Pie's Brighter Future has raised an incredible £9,156.44 towards specialised equipment, this is an amazing amount of money and it truly has made the world of difference to Georgia's life. Georgia's days are filled with endless therapies and every aspect of her life requires adaptions, this money has helped to make these obstacles more manageable allowing Georgia to enjoy life. Demonstrating just how vital these funds are £8,128.46 of this total has already been spent on vital pieces of equipment such as eye gaze technology, communication devices, adapted pushchair, specialised bed, physiotherapy equipment and occupational therapy equipment. Georgia still requires further equiment such as a specialised seating system and a specialised car seat.

 

To fund research into a cure for Rett Syndrome.

 

Georgie Pie's Brighter Future's ultimate dream is one shared by the thousands of families worldwide effected by Rett Syndrome and that is for treatments and ultimately a cure for Rett Syndrome. Scientists are extremely close to finding treatments and we firmly believe that these will come in Georgia's lifetime. Georgia is three years old, time is on her side however it won't be forever. With this in mind we decided to fundraise for Reverese Rett less than a month after Georgia was diagnosed with Rett Syndrome and to date with donations still coming in £3096.98 has been raised.

 

Georgie Pie's Brighter Future has chosen two charities to fundraise for - both charities focus on speeding treatments for Rett Syndrome and are run by families effected by the condition therefore they are extremely focused and driven to make our dreams a reality.

 

Click on the links below for more information or to donate

 

 

Registered Charity No: 1146806
Registered Charity No. 1136809
JustGiving - Sponsor me now!

If you're interested in our work and would like to support us, read about us and  the projects we've contributed to in the past.

Get involved!

Find out how by contacting us at:

 

georgiepiesbrighterfuture
69 Heol Offa, Johnstown

Wrexham, LL14 2AU


Tel: 07715 667253
E-mail: georgiepiesbrighterfuture@hotmail.co.uk

 

Or use our online contact form.

News

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Our membership has been boosted by the recent recruitment campaign in Wrexham. Thank you for your support!

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